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About SMA
SMA (spinal muscular atrophy) is a genetic disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1).
Spinal muscular atrophy (SMA) causes muscle weakness and progressive loss of movement. It is caused by deterioration in the nerve cells (motor neurons) connecting the brain and spinal cord to the body’s muscles. As the link between the nerves and muscles breaks down, the muscles used for activities such as crawling, walking, sitting up, moving the head and even swallowing, become progressively weaker and shrink (atrophy)
Treatment for SMA now In India
Considering the huge unmet need of SMA patients in India, CureSMA India worked with Roche, patient community, HCP community, and the regulators to fast track the approval processs and Evrysdi(Risdiplam) is the first and only approved treatment available in India for SMA patients across all types.
Treatments like Evrysdi (Risdiplam) by Roche pharmaceuticals, Zolgensma – the only approved gene therapy for spinal muscular atrophy , and Spinraza given via an intrathecal (IT) injection which is currently unavailable in India.
Know more about such treatments.
Our Approach
It’s our mission to help people get access to the expensive therapies and treatments by a large number of helpful campaigns.
Help the community
The CureSMA foundation of India has been specially created for the SMA community.
Breakthroughs in treatment
SMA is a rare genetic disorder but a number one killer in children.
Latest News
Grab all latest news for charity, donations, crowdfunding, fund-raising or new campaigns CureSMA launch.
- First National Conference on Spinal Muscular Atrophy (SMA)
- 1st world congress on accessibility to Medical Products organized by WHO & Ministry of Health & Family Welfare- 22nd Nov 2017
- International Child Neurology Congress , Mumbai
- Our Director-Legal Affairs, Mr Sashee Vij,- participated in “the SUMMIT” organized by NOVARTIS & Rare Cancer Australia
- Kolkata SMA Warriors with Famous Celebrity Mrs. Usha Uthup supporting cause for Rare Diseases along with Mr.Prasanna Shirol, Founder ORDI.
About us
Welcome to the CureSMA India Network
Cure SMA Foundation of India is a parent led community, initiated in January 2014 by a small group of parents of children suffering from Spinal Muscular Atrophy, a rare genetic degenerative, life threatening, crippling neuromuscular disease. Parents of SMA warriors and adult SMA patients joined hands to raise awareness about the disease, build infrastructure for better management of the disease, and advocate for broader access to available and approved treatments and clinical trials. In five years, the community evolved, became incorporated and grew
Annual Fundraiser
Join the cause! Help raise for the SMA community.
We conduct several campaigns, support initiatives, and awareness activities to generate funds to support our patients every year. We believe not only in providing access to a range of therapies but also in creating them.
How we help.Empower with
Empower with
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Health
Study
Funding
Awareness
We provide unbiased care for all our SMA patients.
We communicate honestly and openly with all our members and provide them with free access to various healthcare facilities and basic food and medicines. By doing this, we can aim to create a stronger community for our platform.
Upskill, each day, each hour.
CureSMA Foundation believes in providing all possible educational opportunities to our community which can help them to work well with the outside world. Learning and growing, from kindergarten to high school and training for adults, vocational training, all form an integral part of being independent.
Raising Funds for Critical and Urgent needs
The funds raised by us help provide treatments that might be unaffordable or inaccessible to SMA individuals.
We need your help.
Featured Campaigns
It’s through your collective support that we can beat this together.
I have a Dream
Bunch of Super Car enthusiasts came together to bring about awareness about the expensive drug…
Target ₹10 lakh | Current ₹0 lakh
SMArt Vs Artist
I wanted to be an artist, with my current weakness in muscles, I am unable…
Target ₹10 lakh | Current ₹0 lakh
I want to protect my country
I as a kid dream of joining the defense/fly airplanes and serve my country, with…
Target ₹10 lakh | Current ₹0 lakh
“I realize that school can help me achieve my goals and improve my life.”
CureSMAIndia Warrior
Who we are.
Make a Difference
Learn more about our goals, supporters, and SMA patients and their families.
Free Access
It’s free of charge to provide service and raise funds. Easily get access to campaigns or projects.
Customized Treatments
By the funds we receive from our supporters, we aim to utilize the funds in the best possible way to treat SMA patients as per their needs.
Real Impact
With your funds, we work with the key people from the industry to perform extensive research for getting breakthrough and evidence-based results, creating a real impact in lives.
Safety Net
A safety network lets your donations and funds guarantee a safe way to the SMA network and individuals
Questions? Ask!
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We provide unbiased care for all our SMA patients.
We communicate honestly and openly with all our members and provide them with free access to various healthcare facilities and basic food and medicines. By doing this, we can aim to create a stronger community for our platform.