Cure SMA Foundation of India

Cure SMA Foundation of India is a parent led community, initiated in January 2014 by a small group of parents of children suffering from Spinal Muscular Atrophy, a rare genetic degenerative, life threatening, crippling neuromuscular disease. Parents of SMA warriors  and adult SMA patients joined hands to raise awareness about the disease, building infrastructure for better management of the disease and advocating for broader access to available and approved treatment and clinical trials. In a few years, the community evolved, became incorporated and grew.

 

Cure SMA Foundation of India is a registered public charitable trust with pan India representation. Since the humble beginning of 10 families, we have grown to represent  SMA families and individuals across the country. Each year we support SMA families through our newly diagnosed care and counselling, resource pool, SMA camps and supportive services, patient advocacy and many other direct family support services. We are extensively working to empower SMA patients and enabling them to access existing services and facilities. We have augmented our effort  to bring the lifesaving SMA therapies to India.

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Spinal muscular atrophy (SMA) is an inherited disease where there is progressive loss of motor nerve cells in the brainstem and spinal cord that control essential muscle activity such as wa lking,sitting,breathing and even swallowing.
There is an estimated 3 to 4 lakhs affected children in India,although this may be an under prediction as it is from an extrapolation of western data.
SMA AWARENESS EVENT @ Baptist Hospital ,Bangalore on 15th August,2019

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