Advocacy with Govt – CureSMA

Meeting with Director General controller of India

<img alt='' data-src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

Moumita

Participated in round table discussion on the National Rare Disease Policy

<img alt='' data-src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

Moumita

Archana Panda & SMA Warrior Anushka Panda- met honorable Health Minister Shri J.P.Naddaji- to discuss about Spinal Muscular Atrophy.

<img alt='' data-src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/c272d0ce18ae1bf8e58e392fd2adcaa1?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

Moumita

Participated in a stakeholder meeting conducted by Preeti Sudan, Health Secretary, Ministry of Health and Family Welfare

<img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

curesma

Met the Insurance Regulatory and Development Authority of India (IRDAI) in Hyderabad

<img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

curesma

Met Dr. V K Paul, member of NITI AAYOG and discussed the availability, affordability, and accessibility of SMA treatment in India

<img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

curesma

Met Dr. Harsh Vardhan, Minister of Health and Family Welfare, Government of India

<img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

curesma

Chief Economic Advisor of India to discuss on funding for SMA treatment

<img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' data-src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' data-srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo lazyload' height='30' width='30' decoding='async' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' style='--smush-placeholder-width: 30px; --smush-placeholder-aspect-ratio: 30/30;' /><noscript><img alt='' src='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=30&d=mm&r=g' srcset='https://secure.gravatar.com/avatar/3eaeed3e3027f01f0b0c55db8b724274?s=60&d=mm&r=g 2x' class='avatar arm_grid_avatar arm-avatar avatar-30 photo' height='30' width='30' decoding='async'/>

curesma