This document aims to provide interim guidance about the standards of physiotherapy management for SMA patients in home care setting as well as in Hospital care settings. The guidelines are for the physiotherapists, for the parents of Spinal Muscular Atrophy children and their caregivers, so that they can receive standard of care to combat their disabilities and also make them stay away from COVID 19 infection. In these current scenarios COVID 19 pandemic is continuing to make things difficult upon the people in our country and across the world for few months. So it is very important to understanding the fact that the children with disabilities and other special needs are now facing additional crisis as they are failing to receive conventional medical management due to various reasons brought about by the pandemic. As individuals with SMA often has difficulties performing the basic functions of life, such as walking, eating, swallowing , breathing , so that recommended standard of care of SMA is often complex and comprehensives, requiring the involvement of multi – disciplinary specialists, including Ped- neurologist, Ped – pulmonologist, Orthopedics, Clinical psychologist, Dietician – Nutritionist, Ped – physiotherapist, Occupational therapist, Orthotist and prosthetist. The role of Ped – Physiotherapist is such vital in the optimal functioning and management of patient with SMA .
ROLE OF PHYSIOTHERAPY
The focus of physiotherapy for SMA patients is to set up a multimodal approach to deal multiple symptoms as discuss earlier, prevention of infection is also very important part of therapeutic standards. Physiotherapist aim to optimize function by maintain muscle strength, improve muscle tone, maintain Full ROM of joints, prevent tightness, contracture and deformities due to muscular imbalance, restore body balance and control of equilibrium, improving fine motor skill to maintain independency in Activities in daily living as much as possible, and most important to maintain bronchial hygiene and optimum respiratory function .