I’ve only lived a life with caregivers. Born with Spinal Muscular Atrophy, a neurodegenerative disorder, I was diagnosed in my teens. As the disease is progressive, it continues to weaken my motor skills, my ability to sit, stand, walk, and lie down. My entire childhood was an adventure quest of sorts to seek treatment for my disability, with my Dad at the helm, followed by the rest of Clan Irani, close friends, sundry pets, and the occasional Good Samaritan.
These quests took me to more than two dozen cities globally and helped shape my calling in a way. The fact that I was not only expected (and did) to work at my family owned bakery as a child but also seek education in institutions which catered to able-bodied folk, conditioned my world-view to that of seeking solutions rather than be hindered by disability.